Any "Lyme" Stories on Here?

BushartBushart Senior MemberPosts: 1,793 Senior Member

Boy this has been frustrating
My 26 year old daughter who a few years back was one term away from completing her nursing school

And then the health issues came and she did not finish----when it started the Doctors could'nt figure what was ailing her
Standard blood tests showed nothing

A year and a half back she came back home and we looked into what was going on
An MRI showed a brain issue---and the doctor was ready to declare MS (Our lyme research shows this is common)

Also a year ago I suggested if it could be Lyme?----one blood test---came back negative---so they said no to it

So onward to neuro-specialists---cardiologists---and varying types of specialists--all not finding a reason

She now walks with a cane---has to wear special light sensitive glasses and just this week her speech became slurred

So Ma N Pa start the research again and 99% of her symptoms over this time look like Lyme disease---we have found this is blowing up worldwide and the medical community is not keeping up

Many other people are going through the same dead ends our daughter has---up to and including it may be psychological

I did some calling and found there is a skin biopsy that may show something---so this Tuesday she has another appt to ask her family doctor for any clues

So is there anybody else here dealing with this nightmare?

Replies

  • EchoTestEchoTest Posts: 480 Senior Member

    I'm not trying to make light off or diminish your plight or that of your daughter or you or distract from or detour your discussion or anything rude or narcissistic or megolomaniacal or anything in any way.....I swear on Lao Tsu's Tao Te ****....

    When I was 7 I found what I thought was a scab on my back and picked it off and threw it in my mouth and it tasted funny and was wiggling on my tongue and when I spit it out it had legs and was moving and I wondered what the fudgesicles is that?

    Couple years later I found one tucked under my sack! I was a hard core 100 pound loaded Safety Orange backpack with matching orange anodized aluminum external frame long trek vertical hiking 14 year old Order of the Arrow military dependent Philmont Scout Camp catalog most arduous hard core expotition selecting Boy Scouts of the early 1970s...

    And then one day in 7th grade Spanish class my synthetic material woven white big bell liesure suite slacks were dragging on my calves and sending nerve shooting spine tickling lightening bolts up into my medu...medooo....my brain.....and as soon as I set my books on the desk and sat down I poked around to investigage...

    It was an embedded and infected **** filled pustule with a half inch Texas Prickly Pear cactus spine from a strand of Texas Prickly Pear spine cactus I ran into while running through the hill country scrub on top of a hill over a canyon during a week long Scout summer camp full of classes meant to fulfill merit badge sign off cards on our way to Eagle Scout certification and acceptance in one of the United States top military academy establishments....

    Wasn't a tick....but I know what you're going through....I got tested way back in the late 80s when I was convinced I showed all the symptoms......my drug addicted sister mistakenly thought her symptoms were Lyme disease as well....

    Bottom line...its not something to mess around with....

    And ever since we moved here my wife has been buying apple flavored corn and feeding a herd of 40 every morning on the same driveway I walk down to take out the trash and check the mail......I've been trying to tell her....but she don't care...you all might know how they can be....wives I mean....and I also feel sorry for them....the does of course......running around trying to avoid the **** squads every spring...hobbling around on shattered and injured limbs because a-holes run around our rural hood in a hurry trying to keep in time with their head movie schedules.....I can't even begin to tell you how many deer have died a pan filled suffering death buzzard picked carcass on our front yard because somebody needed to get home in time to watch some show.....

    There was one poor doe that's been running around on one completely shattered hoof for two years now....every time it heals the season changes and the **** squads come around and she's injured and hobbling again.....haven't seen her this spring yet.....that's highly unusual since she was pretty much hanging out in the oaks and showing up for corn everyday because her injury was so bad....but it might be the best thing....it had to hurt trying to get enough to eat with a perpetually shattered right rear foot.....she was mostly bones....mostly.....

  • EchoTestEchoTest Posts: 480 Senior Member

    That would be R@pe squads of Bucks....R@PE Squads.....happens every spring....torn up does running around saying enough is enough tryint to escape and hide from them and needing extra calories as a result...and then the bucks head for the cool trees in the high country to smoke dope and tell tall tales while the poor does....including does to young to be having babies.....are trying to get enough to eat to have babies and run fast enough to get their swollen led zeppelin bellies out of the way of speeding cars before they are Buzzard food on my front lawn....

    Not white deer problems...deer don't come in 'races'....that's a human artificial mental construct!

  • EchoTestEchoTest Posts: 480 Senior Member

    And why the H-E-Double Toothpicks was Ch!ing censored?

    Wait a minute....I remember now....I ran into this a week or so ago....

    Did they hire the censorship app developer from Kathmandu? D@mned racist Dal Bhat eating fermented Yak Butter tea drinking bastages? What the H-E-Double Toothpicks is wrong with Ch!ing?

    Ch!ing, ch!ing, chi!ing a ling a ch!ng ch0ng....we love you!

    How can you hate Julie Andrews? She's more of a National Treasure than Dame Judy Dench could ever hope to be!

  • EchoTestEchoTest Posts: 480 Senior Member

    Sorry you're daughter has Lyme disease. I 'member one of the RHWOBH houswives said she had it too. Nobody believed her, they were always trash talking her and saying she had Munchausen's proxy and also trying to get more sympathy and airtime on the show....and now its magically in remission I seem to remember....

    NOT IMPLYING ANYTHING....I KNOW I DON'T KNOW....I'm just talking about the show...

    Wish your daughter the best!

  • Shawn C.Shawn C. Senior Member Posts: 5,448 Senior Member

    Oh, man. Horrible news. Here is wishing for an accurate diagnosis and the start of recovery!

  • fishingcomicfishingcomic Senior Member Posts: 21,434 Senior Member

    Yeah this has got to be so scary.

    'I've spoken of the Shining City all my political life. …In my mind it was a tall, proud city built on rocks stronger than oceans, windswept, God-blessed, and teeming with people of all kinds living in harmony and peace; a city with free ports that hummed with commerce and creativity. And if there had to be city walls, the walls had doors and the doors were open to anyone with the will and the heart to get here. That's how I saw it, and see it still.'" Ronald Reagan
  • George KGeorge K Super Moderator Posts: 8,594 Senior Member

    Just a suggestion - If you have not done so already try to get an opinion from a rheumatologist. Some auto-immune forms of arthritis can mimic Lyme disease. It happened to a friend of mine who suffered some of the same symptoms as your daughter. He was misdiagnosed with Lyme disease and was wasting away and losing strength until properly diagnosed with sero-negative rheumatoid arthritis. It's a long shot, but perhaps worth exploring.

    Good luck.

    Keep your stinkin' government hands off my Medicare.
  • BushartBushart Senior Member Posts: 1,793 Senior Member

    Thanks Guys
    I sure will look into that George

  • CO NativeCO Native Senior Member Posts: 947 Senior Member

    This is horrible news!! I agree with George.
    A good friend of mine is going through some bad times with his immune system. His root cause is Lupus which is rare in men, but I'm sure they've tested for that in her.

  • BushartBushart Senior Member Posts: 1,793 Senior Member

    They jumped at MS---but a year gone by now say it's not

    I've been on a research binge----it's literally amazing how many people are in the same boat
    False negatives---misdiagnoses ---one girl was told she was bored by her cardiologist---get a hobby---turned out Lyme

    Doctors are afraid of losing their licences here---if they stray from Medical guidelines

    Seriously looking at sending her to a Naturopathic Doctor if tomorrows answers are more of the same

    Like the saying goes---the time for half measures are over

    PS---guys take this seriously when outdoors with yourselves and loved ones

  • BushartBushart Senior Member Posts: 1,793 Senior Member

    @CO Native said:
    This is horrible news!! I agree with George.
    A good friend of mine is going through some bad times with his immune system. His root cause is Lupus which is rare in men, but I'm sure they've tested for that in her.

    Yes they have---this trailer shows many people talk of misdiagnoses---including lupus

    https://youtube.com/watch?v=sxWgS0XLVqw

  • WetdogWetdog Senior Member Posts: 5,112 Senior Member

    I had it really bad...that and testing positive for RMS fever as well. It's hard to find, it often hides in nerves to appear later. A friend of mine had a bout, went away fast, fifteen years later it arose again, I was lucky for the test results, that's not always the case as you know. Good luck. I had it for six months, the most miserable six months of my life.

    Good luck.....

    I find the assault on free thought disturbing,
    I find the willingness to give it up frightening.
  • BushartBushart Senior Member Posts: 1,793 Senior Member

    Thanks again Dog----Stay well Brother

  • jbillyjbilly Senior Member Posts: 4,623 Senior Member

    Sorry to hear this. I hope you can all get some answers and that she can find some help she needs.

  • BushartBushart Senior Member Posts: 1,793 Senior Member

    Thanks JB

    Had an RN tell me the other day and it's true----you are the best advocate for your own health
    If we don't get answers today --- we'll look somewhere else tomorrow

  • creekyguycreekyguy Posts: 83 Member

    I'm sorry to hear about this. Don't give up on finding the cause and a treatment.

  • BushartBushart Senior Member Posts: 1,793 Senior Member

    Thanks CG
    She seen a GP Tuesday that has now referred this to an infectious disease specialist--so we'll see where this goes now

    Another thing the RN told me the other day---diagnosing lyme is almost like process of elimination----scary if you think about it

    A Senator here said---Funny we can deal with Ebola across the world and yet we lag so far behind in our own backyard

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